I can't believe that tomorrow, Ben will have been home 5 months. After all that waiting, where time seemed to stand still, time is now just flying by. Getting to know this little boy has just been the most amazing experience.
I am having the hardest time writing this update, there are so many questions to be answered, how is he doing? How are we doing? Are things easier or harder than we expected? Do we have any regrets? How is therapy going? Will we send him to school? Does he have any challenging behaviors? Are we doing the best things for him? Have we learned enough? What is it like parenting a child with special needs? All this is swimming through my head, but the only word I can seem to type is beautiful.
That's what he is, perfect and beautiful, busy and curious. More typical than not. He is not a project to be managed. In my most sane moments I remember these things. When I can let go of the anxious feelings of not doing enough, I remember that he is just a sweet little boy. So, I hug him, and remember that he is fearfully and wonderfully made. I cannot change him and take away his disability, but I can support him.
Sometimes reading other blogs is a curse. Other Moms are doing more, they are up on all the latest therapies and supplements, they are scheduled to the hilt. That's great for them, but not for us. It takes effort to remind myself that Ben wants me to relax and play with him, to slowly show him the way. To not be tense and running all over the place all the time. He needs time to move and explore, not time spent in a car seat.
Ben did start therapy, but his "team" and I all agree less is more at this point. We all like it this way, especially Ben. Time in the kitchen to perfect his mixing skills, that's what he wants.
To answer some of those questions, we are all doing great. Things are much easier than we expected. Maybe it's his age, maybe things will get harder, but so far he is not much different than a typical toddler. He is happy and healthy, what more could we ask for? Did I mention he is walking independently, climbing on chairs, navigating the stairs, the boy is on the move. Ay caramba!